Yesterday my mom finally got to give me a bath! My mom massaged oil into my scalp with my baby brush to help with my cradle cap. I loved my massage. Once I was done with my bath my mom massaged lotion into my feet. I was very relaxed after that. She told me she pays a lot to have that kind of treatment for herself. After my bath, I took a snooze from 1pm-3pm, with my mom. I am up to 11 cc's of breast milk. It is still on continuous drip into my stomach from the tube in my nose. In the next few weeks they should try and start volume feeding. I am up to 5lbs 12oz. My second genetic test came back and they have still not found my second mutation. The test looked for 97 mutations. There are over 1,500 mutations. When I get to U of M they will do additional genetic tests to find my other mutation.
Love, Ben
4 comments:
Hey Ben,
Keep up the weight gain! What awesome news!!
I just turned 4 on March 23 and my dad taught me to ride a 2 wheel bike today. My mom almost had a heart attack, but my dad said I'm completely ready! I don't want to stop riding....my mom said I'm going to give her gray hair....whatever that means!
My sister and I keep praying every night for you. Soon you'll be out enjoying the nice weather.
Your friend, Cameron
Ben,
I am so glad to hear you are eating more. You are already growing like a weed, and it won't be long until you will be too heavy to carry.
Keep fighting, little guy. You will be home before you know it.
Tell your parents to call me if they need anything at all.
Jay
Good Afternoon Beautiful Baby,
Gosh you are growing into a big boy! You're sure lucky to have a mom who gives you such special treatment. Grandma misses you today, but we'll be by tomorrow to see you. Love you bunches, XOXOXO Grandma Carol and Papa Phil
I talked with grandma Carol and she is so very proud of you and your GREAT Mom and Dad, you are all an inspiration.So glad to hear how well your doing! With much Love Mark, Irene, Jeremy, and Emily
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