It is official! I am going home today! I am so excited to see the world. Mom and Dad are so ecstatic to put me in my car seat for that first ride home. They are ready to give up the studio apartment at Beaumont. We want to thank all of the great nurses and doctors that have watched over me the past 6 1/2 weeks. They have really done an outstanding job caring for me. Mom said she is nervous because now it will just be her and Dad taking care of me. Her full time "nannies" won't be around at night. Mom said it is a bittersweet moment because this has been our life for the past month and a half, but she is ok with saying goodbye to it. Dad, Mom, and I want to thank all of our family, friends, and new people that have walked into our lives for their awesome support. We are so grateful to have you all in our lives.
I will be going to U of M May 1st for my first meeting with Dr. Nasr.
It's a beautiful day, Ben
20 comments:
Ben, you are AWESOME!
Congratulations on going home - now here are some things you have to know before you go:
1) Allergies - they're pretty bad this year, so when you hear a lot of "waaaachooo," allergies are what is causing it
2) Cats - they will likely smell you a lot and rub their bellies on your head when you're on the floor. DO NOT PULL THEIR TAILS!
3) The floor - this is going to be a pretty important place for you for the first few months. You will see a lot more feet and a lot less faces, but you'll adapt. People will appear taller than what you're used to
4) TV - you're gonna love it! Be sure to watch the Tiger's game Saturday and look for dad!
5) Peace & quiet - there will not be any more beeping and buzzing. I hope you enjoy the silence!
Keep eating and growing and sleeping and pooping (dad loves to change your diapers, I could tell!) and getting stronger every day!
I love you! xoxo, Aunt Carin
Good Morning Beautiful Benjamin,
We are so happy that you are finally going home. Papa Phil got you a home-run baseball from yesterday's Tiger game (your daddy gave him the tickets). Soon you'll go to the games with your dad - he's been a crazy Tiger fan since he was a little guy. You will love your home, your own crib, your bedroom, and the cats too. We love you so much. Cousins Joshua and Madeline have been waiting to meet you and are so excited. God Bless you sweet baby, Love you bunches, Grandma Carol & Papa Phil XOXOXOXOXOXO
Welcome Home, It's about time you got to see the world. On behalf of Judy and myself welcome to the world and all the great things it has to offer. We wish you the very best of everything, Live long and prosper and may GOD BLESS......
art & judy
YEAH for you, Mom and Dad !!!
We are so happy that you're on your way home !
Keep up the good work on getting stronger everyday. Enjoy sleeping in your very own bed. Hugs and kisses to all three of you. Judy, Carl and Sean
Welcome Home Ben!!
Dave and I have been following your progress on this blog and are happy you have reached a point of going home. Our thoughts go out to your mom and dad. Their job requires special patience and love. I have written a prayer for you that I say everyday so God will protect you throughout life and for you to continue to get stronger.
Love,
Linda and Dave Randazzo (friends of Grandma Carol and Papa Phil)
PS. If you are lucky you won't even need to sleep in your own bed like my grandchildren Landon and Anna at that age. You can just sleep in mom or dad's arms. That is so comforting.
Ben,
WOO HOO!! You're going to love it outside of the Beaumont studio apt. Tell your Mom to give my Mom a call if she's up and wants to chat between 2am and 3am because my Mom is usually up then, too!
Love,
Chase
Oh that made me cry! I just talked to your mom on the phone after she got her hair done and she was at whole foods getting you applesauce. Lucky dog that you get people food before u are even 6 months. I will come visit you sometime next week, cuz I want you, your mom, and your dad to get settled in this weekend before I come and bug you guys! Love you! Aunt Annie!
We couldn't be happier for you and your entire family. Wishing you continued progress!
Your friends at MHSI.
That is awsome, way to go buddy. I cant wait to come see you in your new location. I am sure you are going to like this home much more than that hospital. You have to be so happy to be a free man.Your mom and I use to go out to breakfast all the time when you were in her belly. I am excited for our first breakfast together
See ya soon-
Angela
YAY Ben that's great news that you are coming home! Enjoy all the beautiful spring weather we are having and continue to get stronger everyday.
Jill L.
Yeah Ben!!!!
You are going to love this beautiful world, which is a much better place with you in it!
I AM SO EXCITED TO MEET YOU! All of my new friends here in Atlanta have been asking me about you and are always praying for you. When I got the news today that you were coming home they were just as excited as I was! Keep up the great work. Go easy on Mom and Dad the first few days. I look forward to meeting you next weekend.
Enjoy the sun and fresh air!
Love,
Jen Sweets
Hey hey Ben"jammin"
That is so awesome to hear. You will love your new home. Mom and Dad will take great care of you. We can't wait to meet you face to face in July. Pleas have Mom and Dad keep taking pictures of you, you little stud we love to see your everyday progress. Go Tigers and go Red Wings.
Love Uncle Gordy and Great Aunt Claire
Dear Ben, WE are so grateful you are going home!!! Your Mom & Dad are sure excited and happy. We were so happy to see your Mom & Dad and expecially you on Thurs. You are very special. We will keep you and your Mom & Dad in our prayers while we are gone. We will see you shortly after we get back. Love, Great Grandpa & Great Grandma Robke
Dear Benjamin,
Your family is always in our thoughts and prayers. We are so happy to hear about this progress.
Welcome home, to your wonderful life with the greatest parents you could possibly have!
Love,
Uncle Mike & Aunt Kathy
Ben,
Welcome Home!! Those are such sweet words!! We are so glad to have met you and your parents. Know that we will do whatever we can to help you and your family adjust to life with CF. My mom always tells me that soon CF will stand for 'Cure Found' and when it does I look forward to meeting you in person!
Your friend, Cameron
Oh Ben, I'm so happy for you and your parents, I can't even begin to tell you, you are such a blessing to all of us. Tell Mommy to give me a call when she gets settled in. I can't wait to come over and sit on your porch and patio, welcome to sunny days sweet Benjamin!
Love ya,
Aunt Tera
Ben, Kati and Chris,
How wonderful to be in your own home...maybe a little scary, but wonderful too. Nannies, family and friends are everywhere...don't forget that. YOU ARE ALL SOOOOOO LOVED. Mary-Mary and da boyz
xoxoxoxoxoxoxox
xoxoxoxox
xoxoxox
And you have so many more beautiful days ahead of you! Keep the great news coming and welcome home Ben!
Love Ya! ~Michelle
Ben,
I am so happy that you are at home with your mom and dad!! I cannot wait to come visit you! I talked with your mom the first day you went home, ans she was so excited (a little nervous)! I told her that she is going to do great because there is no one in this world that loves you as much as your mom(maybe your dad). I cant wait to see you soon!!
Love you bunches litle one!!
-Aunt Jess
Hey Handsome! Awesome about finally breathing fresh outdoor air, bless your heart, we have been all praying for your release and the day has come. Congrats to you Ben and all the work you have done to get to that stage. Your Mom and Dad, finally your son is in your home; already a bonus there so Mom and Dad can now be with you along with the support and love from everyone.
Some of us will not be able to see you for awhile, however we are in spirit everday thinking about your folks and family everyday.
With love and hugs
Jamie Normie and Riley (the cat) Rapson (achooey)
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