Hello everyone! My name is Ben and I was born March 10, 2008. I have Cystic Fibrosis and Short Gut. This is all about me and my determination to find a cure for Cystic Fibrosis.
I was born with a blockage in my small intestine. This caused a large part of the intestine to twist. When I was 12 hours old I underwent surgery to remove the bad parts. I have about 40-50cm of good intestine remaining plus a healthy ileocecal valve. On March 22, 2008 I was diagnosed with Cystic Fibrosis.
Tuesday, April 29, 2008
$&#@!!!!!
Back at the hospital. Ben just underwent surgery again on his small intestine. We'll keep everyone posted.
Ben, Kati and Chris: Lots of prayers coming at ya Wanted to call or stop by the hospital today 8O( keep us posted when possible. mm and da boyz xoxoxoxoxoxox WE LOVE YOU SO MUCH
Sorry to hear the bad news. You all are in our prayers and thoughts. Keep fightin little man!! Granpa and Grandma Robke, Uncle Gord and Great Aunt Claire
14 comments:
Ben is in our thoughts and our prayers!!!!!
Sorry,
It was from me!
Jen Sweets
Ben is also in our thought and prayers. Hope he is better by now.
Nancy & Bud Krieg
We're all praying for you Baby Ben. Be tough.
Uncle Mike & Aunt Kathy
Ben, Kati and Chris:
Lots of prayers coming at ya
Wanted to call or stop by the hospital today 8O(
keep us posted when possible.
mm and da boyz
xoxoxoxoxoxox
WE LOVE YOU SO MUCH
Love you guys. Stay strong.
XOXOXO
T, N, J and M
Thinking about you guys. Kari, Brian and Anna.
Thinking about you guys. Kari, Brian and Anna.
Team Schultz just checked in after a vacation. Hmmm. We are thinking and praying hard for all of you!!!!!!!!! Stay strong.
Love, Stephanie
We'll keep praying for the three of you. Judy, Carl & Sean
Baby Ben,
We are praying for you out here. Stay strong little guy!
love,
shell
You are in our thoughts and prayers. Stay Strong!
Love,
Kim
Sorry to hear the bad news. You all are in our prayers and thoughts. Keep fightin little man!!
Granpa and Grandma Robke, Uncle Gord and Great Aunt Claire
Sorry to hear the bad news. Thinking about you three all the time. Praying for the best! Love you all you so much! Miss ya!
Love
Uncle Adam
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