Bouncing Boy

I am a very happy boy. I love to eat my cereal. I am now on the vanilla flavored Elecare formula. When mom mixes my makes my rice cereal with the vanilla formula and extra virgin organic coconut oil it smells and tastes like cake batter. I get excited when I watch Mom mixing it all up. Mom hopes this doesn't deter me from eating my veggies when I get to try those. I am starting to move around in my crib. Mom has to call the doctors tomorrow and ask what the next step is for the NG feeds. Since I have a tube running from the feeding bag into my crib and it attaches to the tube on my face. Mom and Dad worry I could roll over and wrap the tube around my neck. We took out the NG last night. We started doing night feeds by bottle last night. Mom got up at midnight, 3:00am, and Dad took the 6:00am feed. We have to make sure I get the night feeds because they add a lot of extra calories to help me grow. If I gain weight this way this should prevent me from having to get a G-tube. Keep your fingers crossed that this will work. I love the activity center my Great Grandma Pawloski bought for me. You can see me in it on video. Mom went to see her friend Laura in Chicago last weekend. Dad and I had a fun weekend together. Mom and Dad also had their first date night, just the two of them, since I have been home. They went to see a movie and had dinner on Friday. Grandma Carol watched me.



Bounces,

Ben

Mr. Independent

I finally got to try rice cereal for the first time. I was so big I even held my own spoon. I am up to 23 k/cal formula. My TPN has gone down to 4 days a week. Soon we will add brown sugar and butter to my cereal, but Dr. Brown said one thing at a time. We want to add things slowly in case it causes any gut issues. I need extra calories because of my CF, so we always have to find creative (yummy) ways to keep me packing on the pounds. I am doing well and weigh 14 pounds. I have been a bit crabby lately and I like Mom and Dad to stand up with me. I know when they sit down and I let them know I do not like it. I think I might be teething and that is making me finicky. I saw snow for the first time today. I woke up and watched it fall through my bedroom window. I thought it was pretty neat.

High Five,

Ben

Happy Owl-Ween

Well I was an owl for Halloween! I went to the Hedricks Halloween Party and hung out with my buddy Nick. Dad was Magnum PI and Mom was a Leprechaun. I went to two of my neighbors to trick or treat. I just showed them how cute my costume was since I can't eat candy yet. I am growing so big! I was 13 pounds 7 ounces on Wednesday this past week. I will get weighed tomorrow to see how many ounces I have gained. I can now hold my own bottle and I can clap my hands and give high fives. My vocabulary is expanding to a few syllables now too. I can sit up on my own, but only for short periods. I love to watch my cats. I am very curious about them. Mom and Dad said they are so proud of my accomplishments in these past few weeks.

Da Da Da

Ben