Mom just called Dr. Brown's office to get my lab results and everything is in normal range! This is the first time I have been born that all my labs have been right on! Here are the main ones we had concerns with.
PTHI (parathyroid hormone) Results: 47 Normal Range: 10-65
Vitamin D Results: 46 Normal Range: 25-80
Vitamin A Results: 279 Normal Range: 113-647
Vitamin E Results: 7.5 Normal Range: 3.8-18.4
Creatinine Results: 0.3 Normal Range: 0.10-0.60
On June 4th my PTHI was 89 and my vitamin D was 24. My PTHI was too high and my vitamin D was too low. We want to make sure I keep my vitamin levels in normal range, especially vitamin D so I can prevent early onset osteoporoisis which can happen with CF.
I think the beautiful sun helped me with my vitamin D levels. I was a baby vampire living in the hospital last year and never saw the sunlight. Vitamin D is a fat soluble vitamin. It is one that people with CF have a hard time absorbing and on top of that so do people with short gut. I am sure my supplements help, but I have been taking them since I was in the hospital last year. Mom puts me outside without sunscreen for about 15 minutes and then we apply it. If it is late afternoon I don't put any on. It was just on T.V. the other day that people in the U.S. are the most deficient in vitamin D. We apply so much SPF and never let ourselves absorb the healing sun rays.
I am defying the odds and wowing my parents and doctors.
I am the man! Ben
Friday, August 7, 2009
Thursday, August 6, 2009
A+
I had two doctor appointments at U of M yesterday. First, I met with Nephrology. They were happy with my progress. My last creatinine level was .2 and that is within normal range. They requested I have a renal ultrasound done to check my kidney size. They have no real concerns, but just want to make sure everything looks good. I then met with Dr. Brown. The entire intestinal rehabilitation team was impressed with my progress. I weighed in at 22 pounds 2 ounces. I was 31 inches long. My height was in the 25th percentile for my age and my weight was about the 10th percentile for my age. I gained an average of 8 grams a day since my last visit. They wanted me to gain between 4-10 grams a day. I was on the high side of their requirement!
I also had to have blood drawn for some labs. I was not a very happy boy when they had to do that. I screamed and cried the whole time. Mom had to hold me down on the table while the phelbotomist found a good vein. She did a good job and got me on the first poke.
Mom and Dad have some videos they want to post of me, but they won't download because the size is too big. They are trying to find a way to compress the files. The picture on my blog post today is my uncle Adam and me at the doctor office yesterday. He helped Mom while we spent the afternoon at the hospital.
Mom and Dad are finally going on their second date since I have come into this world. They are going to dinner and a movie tomorrow. Grandma Carol and Papa Phil are going to watch me. This date is long overdue.
I also had to have blood drawn for some labs. I was not a very happy boy when they had to do that. I screamed and cried the whole time. Mom had to hold me down on the table while the phelbotomist found a good vein. She did a good job and got me on the first poke.
Mom and Dad have some videos they want to post of me, but they won't download because the size is too big. They are trying to find a way to compress the files. The picture on my blog post today is my uncle Adam and me at the doctor office yesterday. He helped Mom while we spent the afternoon at the hospital.
Mom and Dad are finally going on their second date since I have come into this world. They are going to dinner and a movie tomorrow. Grandma Carol and Papa Phil are going to watch me. This date is long overdue.
Smiles, Ben
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