From a medical standpoint, nothing exciting to report today. My Mom and Dad are meeting with a Geneticist on Monday to try and locate the 2 mutated genes that are responsible for my CF. This could help determine the severity and treatment of my disease. Down the road, it may also help my parents give me a brother or sister through in vitro fertilization. The state of Michigan blood test revealed 1 mutated Delta F508 gene. This is the most common mutation found in CF patients. The 2nd was not detected because the state only tests for the 20 - 30 most common of 1500+ possible mutations. This means I am heterozygous CF because I have 2 different mutated genes (each parent passed down a different mutated gene). Had both of my parents passed the same mutated gene I would be considered homozygous.
Thanks to CBSsportsline I was able to watch my first Spartan basketball game with my Dad......except my Dad got mad and started yelling at the computer and turned it off after Idong Ibok couldn't make a layup.
14 comments:
Happy 1st Easter Benjamin Anthony. Your mommy and daddy sure do stay up late supporting the Spartans. Sara and Uncle Scott can't wait to meet you. We love you and are thinking about you and we will see you soon. Love, Aunt Jane, Uncle Scott, Sara, Grant and Emily
Hoppy Easter Ben!
I'm glad you got a chance to see part of the game - what did you think of your first game? It's too bad dad didn't turn the game back on for you - Ibok came out and we didn't have to suffer too much longer with him!
I miss you and am hoping to get up to see you later this week, if that's okay with you.
I hope your days are restful, and your nights peaceful.
Give mom and dad a big hug from me.
I love you, xoxo,
Aunt Carin
Good Morning and Blessed Easter Sunday Beautiful Baby,
I can't believe how much I missed seeing you yesterday. We can't wait to see later today. Tell your daddy to chill out --- those Spartans will give him high blood pressure. God Bless you, miss you, love you, hugs and kisses,
Grandma Carol (Papa Phil and Great Grandma P. too)
Happy Easter Cousin Ben,
Flowers are blue,
Flowers are green,
Flowers are yellow
and flowers are every color you see (with yellow in the middle).
Love,
Joshua
Dear Cousin Ben,
What did the Easter Bunny bring you? The bunny brought me a pink soccer ball and baseball mit. I want you to play with me.
Love,
Maddie
Happy Easter Benjamin Anthony....hope you'r feeling better. Can't wait to see you.
Love you,
Uncle Norman
Hi Ben,
Just got done having Easter dinner with your Grandma Beth, Great Grandma and Grandpa Robke. Uncle Scott said a prayer for you, your mommy and daddy at dinner, it was really nice. We love you sooooo much and can't wait to see you again. I love you honey, Aunt Jane
Hey Ben,
Hope you had a good first Easter. We thought about you all day today and prayed for you. I am hoping to come see you when I get into town on Friday....I can't wait to meet you!
Cousin Jen
Thanks for the blog, we feel so much better knowing you look like you Mom and not your Dad :) We are so exited to see you this summer. I has been really hard to be so far away.Dad went on a faith retreat with 25 brothers and a bunch of Benadictine Monks (not monkees) and added to the army of people who don't know you but pray for you every day. Can you catch a football yet? Kaitlin scored 2 touchdowns in flag football this past saturday and wanted to know.
Love you so much. The Lindblom's
Ben, I am sure you already know this but you are the CUTEST baby I have ever seen! You are very lucky to have such good looking parents! I hope I get to meet you sometime soon.
Love,
Christina Caponi
Hi Again,
Hopefully I get to see you soon!Its so exciting to have another boy add on............ Did you know it has been 25 years since there has been a baby boy born. Uncle Adam was the last baby boy born... I know you already know this but your one of the cutest boy on Earth haha
Love Sara
Hi Benjamin,
I love your website. You sure are a talented little guy setting all this up so we can see your progress. What was that? Oh, you have to give some credit to Mommy and Daddy. Well anyway, you are such a beautiful precious baby boy and I know you are a fighter. I remember when your Grandma Carol rushed out of work after getting the call that you were getting ready to come out and meet the world. I just want to add to the shower of love, hugs, and prayers that you have already received. I can't wait to meet you one of these days. God Bless you and your Mommy, Daddy. Grandma Carol's friend Jane Gabler
Hi Ben! Its been ages since I last saw your Mom and I have not been lucky enough to meet your Dad yet. I am your Grama Beth's cousin...I think that makes you my cousin too. Welcome to the world and your wonderful family who loves you so much. Keep getting stronger so you can go home to your Mom and Dad. I wish you all the best and can't wait to meet you someday. I also went to MSU ..go Spartans! Love to you and your Mom and Dad.
Jeanne Cusack Hayes
Chris & Kati God Bless, your little angel, the more I look at his picture he looks like Chris! We are praying for you little Ben that you feel better, & that you can get home real soon ! Love Bob & Diane Kresevich
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