Hello everyone! My name is Ben and I was born March 10, 2008. I have Cystic Fibrosis and Short Gut. This is all about me and my determination to find a cure for Cystic Fibrosis. I was born with a blockage in my small intestine. This caused a large part of the intestine to twist. When I was 12 hours old I underwent surgery to remove the bad parts. I have about 40-50cm of good intestine remaining plus a healthy ileocecal valve. On March 22, 2008 I was diagnosed with Cystic Fibrosis.
Thursday, March 20, 2008
3/20/08
Today was a long, busy day. I had 35cc's of Barium injected through my nose this morning, so they could x-ray my abdomen and check on the progress. I have had a total of four x-rays today. My mom and dad should get an update tomorrow morning on the progress. My mom and Kate Witt hung out with me all day. I was pretty calm most of the day and just slept. I did vomit the green bile three times today. Mom gets sad when I do. My hemoglobin was low today so they are also keeping an eye on that. On a good note, I almost got the score of the Michigan State game right.
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9 comments:
Hi Little Buddy,
We are sorry you had such a rough day. Tell your Mommy and Daddy to hang in there and hopefully they get some good news this morning.
We love you,
Aunt Nicole, Uncle Todd, Josh, and Maddie
Hey Peanut,
Aunt Annie and Cousin Emma love you very much! I'm sure good news is coming very soon! You are too cute! Emma keeps talking to your pictures that are on the fridge, and she calls you baby Jack(so that might just have to be your nickname) also she wants the purple binky that is in your mouth in the picture. Can't wait to see you again! We Love You So Much!
Aunt Annie and Cousin Emma!
Hi Kati, Chris & Ben,
Great Aunt Jane and Cousin Sara and the rest of the clan hope you feel better soon!! We've said nothing but prayers for you, mom and dad. We love you more than any thing and would do anything in the world for you!!! We've got all the pictures that your mom and dad plus Annie sent to us, you just look beautiful in every single one. Lots of love, the Domines
Hey you cute little man,
I am thinking and praying for you everyday. Rocky and his students said a group prayer for you and your parents. You are so darn cute words cant even explain. I can't wait to meet you. Katie and Chris I love you guys so much and I am here for you. I hope to see the whole family ever soon
Love-Angela
Hi Ben,
Thanks for letting me hang out with you and your mom on Wednesday. You are an amazing little being and I fell in love instantly! I am praying for you, and your mom & dad, too (make sure you tell them that - you didn't give them the last message I gave you about the MSU score). Big love to you all.
xoxo, Carin
Hi Buddy,
Even though we are far away we are thinking about you and praying for you, your Mommy and Daddy. We wish we were able to be there. We know that good news is on its way soon. We can't wait to meet you. Logan and Delaney pray for you everyday. We love you and can't wait to meet you. All our love!
Chris, Jen, Logan and Delaney
Hey little guy,
My name is Sara, I hope to be good friends with you! We've been thinking about you left and right and hope you get better soon..... I love your blog and the pictures on it they are so cute!! Just wanted to know what did you get for Easter I got webkinz clothes in me Easter basket thats it for now I will probaly right you back later hope to hear good news......
Sara
Hi Little Ben,Kati and Chris: Thanks for the update and the beautiful pictures. We love you more each day and can't wait to see you again. Our prayers and thoughts are with all of you. Great Grandma Kay and Great Grandpa Gordie BEN- GO GREEN
Hi Ben,
Its so good to hear from you amd how you are doing. I know you will be glad when it is time to go home and have Mommy and Daddy all to yourself...not to mention how happy they will be!
I know we haven't officially met each other yet...But you. your Mommy and Daddy are in my prayers every night..Please tell them that your Uncle Norm's friemd said hello...and know we are all anxiously waiting for chance to meet you!
Lots of Love to all
Judi Moseley
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