Hello everyone! My name is Ben and I was born March 10, 2008. I have Cystic Fibrosis and Short Gut. This is all about me and my determination to find a cure for Cystic Fibrosis.
I was born with a blockage in my small intestine. This caused a large part of the intestine to twist. When I was 12 hours old I underwent surgery to remove the bad parts. I have about 40-50cm of good intestine remaining plus a healthy ileocecal valve. On March 22, 2008 I was diagnosed with Cystic Fibrosis.
Monday, February 1, 2010
Mr. Cool
3 comments:
Domines'
said...
What a STUD!!!!! We love you Ben. Aunt Jane, Uncle Scott, Sara, Emily, Gracie Lynn and Oscar Jerome. Hugs and Kisses
Oh my goodness Ben! It's hard to believe your going to be 2 soon, and looking so grown up already! I'm so happy to see how good you are doing, keep up the good work :)
3 comments:
What a STUD!!!!! We love you Ben. Aunt Jane, Uncle Scott, Sara, Emily, Gracie Lynn and Oscar Jerome. Hugs and Kisses
P.S. We will be walking with you on May 8th.
Oh my goodness Ben! It's hard to believe your going to be 2 soon, and looking so grown up already! I'm so happy to see how good you are doing, keep up the good work :)
Jill Lanham
How can you be this grown-up already:)
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