Mom just called Dr. Brown's office to get my lab results and everything is in normal range! This is the first time I have been born that all my labs have been right on! Here are the main ones we had concerns with.
PTHI (parathyroid hormone) Results: 47 Normal Range: 10-65
Vitamin D Results: 46 Normal Range: 25-80
Vitamin A Results: 279 Normal Range: 113-647
Vitamin E Results: 7.5 Normal Range: 3.8-18.4
Creatinine Results: 0.3 Normal Range: 0.10-0.60
On June 4th my PTHI was 89 and my vitamin D was 24. My PTHI was too high and my vitamin D was too low. We want to make sure I keep my vitamin levels in normal range, especially vitamin D so I can prevent early onset osteoporoisis which can happen with CF.
I think the beautiful sun helped me with my vitamin D levels. I was a baby vampire living in the hospital last year and never saw the sunlight. Vitamin D is a fat soluble vitamin. It is one that people with CF have a hard time absorbing and on top of that so do people with short gut. I am sure my supplements help, but I have been taking them since I was in the hospital last year. Mom puts me outside without sunscreen for about 15 minutes and then we apply it. If it is late afternoon I don't put any on. It was just on T.V. the other day that people in the U.S. are the most deficient in vitamin D. We apply so much SPF and never let ourselves absorb the healing sun rays.
I am defying the odds and wowing my parents and doctors.
I am the man! Ben
5 comments:
Ben,
It was so nice seeing you at Great Grandma and Grandpa's 50th. You were such a good boy!! You sure were having fun in the coat room with your dad. Your mommy did a great job presenting the book she made for them. I think it was one of their favorites... I love the picture of you and Uncle Adam I bet he had fun hanging out with you, mommy and daddy. Great Aunt Jane loves you very much. Hugs and Kisses
Ben,
Way to go; your family has reason to CELEBRATE!
Love,
Aunt Kathy
Ben - You have come so far Baby !
We are soooo happy for you and your Mom & Dad.
Keep up the good work and enjoy the sunshine.
Judy, Carl & Sean
Yeah Benjamin! I am so so happy to see you beating all the odds! I knew you could do it! I can not wait to see you soon! Tell Mom and Dad that they need to come to Aunt Jessie's party on the 5th of September! Love you!
Aunt Jess
Hi Ben,
You sure are a character, and we love to see you run around with so much energy. We love you so much we just want to squeeze you. God bless you and keep you healthy. We love you bunches, Grandma Carol & Papa Phil XOXOXOXOXO
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