Well I have experienced quite a bit these last few weeks. I got a bunch of gifts from that goofy guy I saw at the mall. I guess he isn't so scary after all. Mom and Dad made me dress up in a few outfits for Christmas like I was in a photo shoot.
I had my first power outage from Sunday morning until Tuesday afternoon. Dad had to go buy a generator because we had to keep all of my medications cold in my med fridge. I also had to be able to do my breathing treatments so we needed electricity to power my compressor. We have to sterilize my nebulizers after each use so we used these Medela micro steam bags in the microwave and had one lamp hooked up for light at night. I didn't know much of a difference, but Mom and Dad said this is how people used to live (minus our bit of power from the generator). Thankfully we had our gas fireplace to keep us warm. I loved seeing all of the candles and flashlights. We even made shadows puppets on the wall.
I was up late for my first New Years Eve to watch the ball drop. I was eating my ba ba while I watched TV and then Mom planted a big smooch on my cheek at midnight. I was whisked right back to bed after the festivities.
Well it is now 2009 and I have a lot more "firsts" look forward to. I will be turning one this year. I can't wait to actually be outside this spring and summer.
I also have some appointments this next week at U of M that I am not looking forward to. I have surgery scheduled on Jan 6th to have my broviac inserted back in to the original spot. It has come out over time. I probably haven't helped it since I like to grab at it any chance I get. Plus I have grown and with my chest cavity expanding that may have pushed it out a bit too. When I am in the recovery room from that surgery they will be performing an echo cardiogram on me. I had a visit with my cardiologist on Dec 22nd and they could still hear the heart murmur that I had when I was born. I have a small Ventricular Septal Defect (VSD) which is basically a hole in my heart. The echo will let the doctors know how big the hole actually is. The pictures will determine if I need surgery or if it will heal over time. I also have my monthly checkup with Dr. Nasr on Jan 7th. I think I have been behaving so she should be happy.
Wishing you a healthy, happy new year!
Ben
9 comments:
Benjamin,
Happy New Year sweet boy! I have been saying my prayers for you and your mom and dad lately! I am so proud of you for being so strong and brave! How exciting to experience so many wonderful firsts! I can't wait to come to your first birthday party! Love you kiddo!
Aunt Jessica
Dear Benjamin, Dad and Mom too!
Merry Christmas and Happy New Year! Loved the card. It's up on the fridge so we can see Ben all the time. Had a good time up north with Grandpa and Grandma. We are all so glad you are still gaining weight and doing better. Hope to see you all soon.
Love and Kisses
Aunt Margo, Uncle Richard, Matt and KaitlynXOXOXOXOXOX
P.S. We did not have power up north for 37 1/2 hours either.
Hi Ben,
Just wanted to stop by and wish you a Merry Christmas and Happy New Year. I bet Santa was good to you and brought you lots of presents. I really like your picture with Santa. You are such a handsome little boy and growing so fast.
Grandma Carol's friend Jane.
Happy New Year Baby Benjamin!
Your Daddy and Mommy sure did a great job getting you safely through that power outage. What fun it must have been for you to watch all those strange lights from the candles and flashlights!
We shared your Christmas pictures with all of the Schwartz's at our Christmas gathering. Everyone agreed that you are a very handsome little guy and you are looking wonderful. Keep up the great work and we'll keep watching this blog for updates.
Love to your family,
Aunt Kathy & Uncle Mike
Hey Ben "jammin" sounds like all night too!! Happy 2009 lil man. Thank you for the picture you little ladies man, studly dude you!! You are in our thoughts and prayers everyday, we will be thinking of you on the 6th. Have mommy and daddy keep us posted!
Love Uncle Gordy and Great Aunt Claire and cuzzin ( that is how we spell it in the south) Reagan
Hi Beautiful,
All your new pictures are so cute -we love them all. We miss you and mom and dad so much, but both Papa Phil and I have colds so we can't visit. Even though it won't be as good as a real visit (because I can't hold you and dance) we're going to buy webcams so we can see you and talk to you. God Bless your surgery at U of M. We wnated to go with you, but we can't take the chance of passing on our cold germs. We love you all bunches!
Happy New Year! You guy's are in my thoughts and prayers everyday. I'm so glad you are growing big and strong. I'll keep watching your blog for updates.
Kim
Hey Buddy,
I haven't seen or talked to you in a little while, I have been battling a cold as well (yucky stuff). Just wanted to wish you luck on your upcoming surgeries and appointments. I see that you finally got to meet crazy Aunt Michelle, she sure is a silly one. Miss you!
~Aunt Tera
Hi Ben,
So glad to hear you liked Santa! He was good to me also...
I say this 2009 we make it a great year...2008 was a little rough for the both of us. I just got a new "toy" called an Acapella and I can use it sometimes in place of my vest. I think it's really cool because I don't like my vest. My mom keeps telling me that I always have to do the vest, but sometimes I can replace it with this new mechanism. We'll see, I've been telling her EVERYDAY that I want to do the Acapella and she keeps referring to that darn vest. We'll see who wins this battle....I'm pretty persistent, but my dad tells me it's not wise to argue with my mom because I'll never win. He says he doesn't at least!! I don't think he can whine quite like me!:)
Take care and we'll be praying for you during your surgery....you are a tough kid and we know you'll do great!! I saw Dr. Nasr on the 7th also...I gained a lb. and grew 1 1/2 inches....my mom says I'm almost as tall as my dad. He gets mad when she says that!:)
Best of luck and say hi to your parents!!
Your friend, Cameron Hain
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