Hello everyone! My name is Ben and I was born March 10, 2008. I have Cystic Fibrosis and Short Gut. This is all about me and my determination to find a cure for Cystic Fibrosis. I was born with a blockage in my small intestine. This caused a large part of the intestine to twist. When I was 12 hours old I underwent surgery to remove the bad parts. I have about 40-50cm of good intestine remaining plus a healthy ileocecal valve. On March 22, 2008 I was diagnosed with Cystic Fibrosis.
Saturday, November 1, 2008
Happy Owl-Ween
Well I was an owl for Halloween! I went to the Hedricks Halloween Party and hung out with my buddy Nick. Dad was Magnum PI and Mom was a Leprechaun. I went to two of my neighbors to trick or treat. I just showed them how cute my costume was since I can't eat candy yet. I am growing so big! I was 13 pounds 7 ounces on Wednesday this past week. I will get weighed tomorrow to see how many ounces I have gained. I can now hold my own bottle and I can clap my hands and give high fives. My vocabulary is expanding to a few syllables now too. I can sit up on my own, but only for short periods. I love to watch my cats. I am very curious about them. Mom and Dad said they are so proud of my accomplishments in these past few weeks.
Da Da Da
Ben
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12 comments:
Hi Buddy,
You are so cute! Grandpa and I loved seeing you in your owl costume. We watch your video clips several times each day and are so proud of you and your mommy and daddy too! God bless you and keep you strong. We love you all so much. Grandma Carol & Papa Phil XOXOXOX
Hi Ben - so happy to see you are doing so well. Love the videos! You've come a long way baby....keep up the great work. Keep on puttin on the pounds! Judy, Carl and Sean
Benjamin,
I think mommy picked out the cutest outfit for you to wear. (Didn't she have like 5 or 6)?It makes me smile to hear you laugh and talk on the videos. I just love you sooooooo much. Tell mommy and daddy Great Aunt Jane says hi and tell mommy to look at her email of Uncle Scott and Obama, he showed up at our house for Halloween. Oh boy, it was exciting.........XOXO
Ben, you are the cutest owl! Keep up the great work. Hope we can see you soon. Love and Hugs from GA!
Chris, Jen, Logan and Delaney
So happy to see your doing so well, really enjoyed all the pictures! Think of you often! Love Mark, Irene, Jeremy, and Emily
hooo hooo! you are the cutest lil owl ben! good pick mom! we need to see a pic of the whole family though...the leprechaun - magnum pi - and the owl...haha. it makes me very happy that you are continuing to do so well...sitting up on your own...giving high fives...talking more! keep up the great work!!
lots of love -
meghan
Go Ben, you are almost looking a little chunky, I love it! Aunt Tera has to come and see you very soon, I'm so glad you enjoyed your 1st Halloween!
I continue to pray for you and your parents everyday. It was a blessing for me to have met such a strong young man such as yourself.
Did I see a double chin in some of the new pics!?!?! I love it!!
Dear Benjamin,
What a wonderful first Halloween! Thank your Mom for the new pictures and video. We love watching your progress.
Aunt Kathy & Uncle Mike
Hi Ben Owl,
You are so cute in your costume! I love the video of you under the mobile. Keep up the good work, Aunt Margo & Uncle Richard send you and mom and dad their Love & Prayers,
XOXOXOXOXOXOXOXOX
Hi Sweetie,
I just watched the video your mom put online and I can't help but to smile!! You are getting SO big!! You are getting more handsome everyday (I didn't think that was possible!) . I love to hear you laugh! :)
Keep smiling sweet buy,
I love you,
Aunt Jess
xoxoxoxox
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