Well I decided I did not want Mom to go on her trip to San Francisco. When Miss Tera came to baby sit me Thursday morning I had an unusual stool and Mom thought there might be blood present. She took my diaper to the pediatrician and it came up positive for blood in my stool. Mom and Miss Tera drove me straight to U of M Hospital to the ER. I had an NG tube put down my nose to help relieve some of the gas in my intestines. The x-rays didn't show much. They took my blood and did a bunch of tests and nothing came back positive for anything. Mom mentioned C-diff to the doctors and they said I wasn't presenting the "typical" symptoms. It is a simple test where they collect my stool and put it in a vial and send it to the lab for testing. Well after making me NPO (no feeds) for 6 days and putting me into surgery for a Broviac (google it) the doctors still did not have any idea of what was causing my bloody stools. GI recommended that they test me for C-diff and when I finally had a poop yesterday they collected my stool and send it to be tested for C-diff. Well today the test came back positive. Mom and Dad were very upset that we could have tested for this the first day I was admitted to the hospital. I have gone 6 days with out eating and I have lost 1 whole pound! I was almost 10 pounds when I was admitted and now I am about 8 lbs 14 oz. It has been a torturous 6 days for me and it has made mom cry. I love to eat and the TPN I am on is not taking the hunger away. Due to my history of NEC they began treating me Thursday night with the 3 antibiotics I was on before. Right now there is some inconsistency with the 3 teams that are treating me. Mom will discuss things further with them tomorrow and voice her opinion some more. I think there are too many cooks in the kitchen right now and Mom may request to just be in contact with my primary team, Dr. Nasr.
Where is the milk man?
~Ben
10 comments:
Good Morning Beautiful Benjamin,
Grandma enjoyed holding you yesterday and grandpa loved that you smiled when he talked to you. Your mommy takes such good care of you and has the doctors on the toes. We are sad too that you have not bee able to eat and hope the doctors resume feedings soon. See you this weekend. God Bless you, Love you bunches & bunches, Grandma Carol & Papa Phil
Hi Ben,
Uncle Norman here, I guess the Doctor's need to listen more to your Mom & Dad, they seem to know more about what is going on with you. Your Mom is the best in the world and she keeps up on everything that you need. We all love you very much. I can't tell you how lucky you are to have such a great Mom & Dad. Be strong and give your Mommy and Daddy a big hug for me. Hope to see you real soon.
Love,
Uncle Norman
P.S. Jerry sends his love and he was really happy he had a chance to meet you when we were in town.
i'd be cranky if i hadn't eaten in six days too. hang in there ben, i'll be thinking of ya.
We are so sorry that you have to go through all of this again. Hopefully you will be able to eat soon. I can relate with your mom and dad, and it is very frustrating and emotional to watch your baby go through so much. Our prayers are with you and your family. Stay strong and keep on fighting!! Love~Trinity's Mommy
Sweet Benjamin,
I have been thinking of you a lot lately and I am so sorry to hear that you haven't been able to eat. Tell your mom that I think of her and pray for you everyday and I love you both SO much!
Xoxoxoxo,
Aunt Jessica
Hey Ben,
Send hugs to mommy and daddy from us. We miss you all and can't wait to see you again. Don't worry little man, you will be back to eating soon! Dr. Nasr will put the other docs in the right place. Hang in there pal! Love to all!
The Sweets Family
Hey there Ben. So sorry to hear about your recent hospital stay. We know how much you were enjoying being at home. You will never guess who has Gym Class with me (Kari) on Monday afternoons.. your big cousin Josh! I can't wait to see him next week. Maybe you will be able to come visit us at our school sometime. Take care. Kari, Brian and Anna
Hey Ben"jammin"
Hang in there. It sounds like daddy and mommy are taking care of business. We miss you so much!! Keep bringin the pictures we love that. Love and prayers to you all. Great Aunt Claire and Uncle Gord
Ben,
I am just wondering how your doing little man! In case you didnt know, it is your moms birthday tomorrow. I love you and think of you everyday!
Love,
Aunt Jess
Hey there more handsome than ever!
Your mom and dad have every right to be upset. Me thinks that your mom is right there are too many of everybody. Go Kati and Chris!
We are praying for you as usual as well send hugs to your folks. On to better things like eating and going for one of those buggy rides you like so much. Plus you are going to be too busy with Spartan football and other social events to be bothered with those "cooks". Rock on! I was with your Bamma when your Mom was born 28 years ago! Yikes!
Love the Rapsons
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