I went to see Dr. Nasr and Dr. Lumeng at U of M yesterday for my monthly checkup. It was a very busy office. They were seeing 45 patients yesterday and 14 of whom had CF. My weight was 9.03 lbs. My dietitian was very happy with my weight gain. She told mom she knew the Elecare formula was what I really needed more of and was glad Mom had made the transition. She said with all of the trauma and massive bowel resection I had that the elemental formula was best for me. Mom and Dad know this is a God send when it comes to me gaining weight. Thankfully after the many discussions with insurance it seems my formula is being covered. It is $55 a can! I will be going through about 12 cans a month. Who said babies were cheap :) It has to be sent to the house from a medical supplier since you can't buy it off the shelf at the grocery store. They did another throat culture since I seemed to be coughing a little bit more. Hopefully it will come back with just normal oral flora. I was referred to physical therapy to help me work on my strength. Since I have some weight catching up to do this will just help to make sure I am on track with my physical development. After my long morning and afternoon trek to U of M, I went to the Detroit Zoo last night. I met my buddies, Jake, Nick, Ryan and Josh there. I slept through most of the excursion. It was a nice cool night for a stroll.
Life is good.
Ben
19 comments:
Fantastic! I am so happy to know that you are doing well! I met your Grandma when she came to work with us a few months ago in Santa Clara, CA. I asked my church and friends to pray for you and your family, and I know that God has answered our prays! I will continue to keep you in prayer and let the church know your progress. Love, Sherry
Way to go Ben!
You are so strong! Mommie and Daddy are doing a great job! Keep them on their toes. That's what kids are for! Like Bamma Beth said your initials are BA and that stands for Bad A--! Keep up the good work and tell Callie and Mickey to stay out of your bed. Can't wait to see you!
Love Bamma Beth and Papa John
XOXOXOXOXO
This is wonderful news; many prayers are being answered. We always want the best for you and your Mom and Dad.
Love,
Uncle Mike & Aunt Kathy
Hi Beautiful Benjamin,
So many friends and family are praying for you, and they are all excited that you are growing stronger. Everyone loves your reading your updates and seeing your pictures. God Bless you sweetheart; I love you with all my heart. Grandma Carol (& Papa Phil)
Ben,
So glad to read and update and you're doing so awesome! Love the new pics - especially the one of you laughing at Mom in your bath towel - too cute!
Take care and keep bustin' a move on the scale!
Jill L.
Ben,
I love to hear that you're gaining some lbs...that's great news! You look so sweet in your pictures and the Tigers outfit is great. I'm going to see your Mommy and Daddy in a couple days and I'm very excited! Make sure that you are on your best behavior when they are gone :) They've already told me how much they are going to miss you and how much they will be thinking about you.
I hope to be able to meet you soon.
love,
shell
Benjamin,
I am so proud of you for being so strong!! I love to keep reading how well you are doing... I wish I could see you to tell you how happy I am that you are doing so well!! Give your mom and dad a big smile for me and let them know how proud of them I am too. I miss all of you SO much and think of you everyday. Keep up the good work little bug!!
Love Aunt Jess
Hi Ben:
It is great news to know you are gaining weight. God Bless the makers of the Elecare. Continue to be strong. We often think about you and pray you will continue to show steady developmental gains. Love, Uncle Todd's Mom and Dad (Crystal and Rollin)
Hey Cutie,
I've heard you've been putting on the weight, even since the Tiger game a few weeks ago, way to go! Sorry I didn't make it over to see you this weekend, I think I will try and come by right after work tomorrow. I'm getting excited to spend the day with you on Thursday, we're going to have lots of fun!
Love ya,
Aunt Tera
Dear Ben: Just got back on the blog and so happy to hear of your progress. We love the new photos of you.Hopefully we can get to see you sometime soon. Keep up the good work! We love you and your Mommy & Daddy. Love, Great Grandma & Great Grandpa K & G
Dear Ben,
Glas to hear about the weight gain. We loved the pictures also. We miss you and Mom and Dad bunches.
We especially loved the picture of Mom and you together. How about one of Dad and you too.
Much Love and Prayers
Aunt Margo & Uncle Richard XOXOXO
You go little man!!
Keep on moving forward and soon your weight will be in double digits. So happy to see you smiling......be a good boy while Mom and Dad are away. You're always in our prayers. Love, Judy, Carl and Sean
Hey my BFF, Ben!
I love the new pictures and am smiling from ear to ear. You are so stinkin cute. Glad you are doing well and thanks for letting your Mom (who is also so stinkin cute) come to my surprise 50th party. It was great to see her. Keep smiling and eating... two of my favorite things in life! We love you. Mary-Mary and da boyz xoxoxoxoxoxoxox
Hi peanut! I haven't been blogging in a while, so I needed to say hello!
Congrats. You finally found your magic potion for food. You have a budda belly and we all love it! Keep gaining those L-B's and working on those muscles, because your buddies are looking foward to playing tag around the yard.
We had a great time at the zoo the other night. Bummer that so many animals were in their cages eating dinner. You, however didn't seem to mind - sleepy boy. It was kind of fun for the mommies to think that we will be making trips to the zoo for many years to come. So much fun!
Have a good weekend with Aunt Annie. I know that you will miss your mommy and daddy, but just think- when they get home, they will be sooooo happy to see you that you will be spoiled rotten for days! Happy day!
Lots of love -
Aunt Katie (Uncle Jay & Jake too!)
Hey Ben!
You are looking fantastic! I love your new pictures, especially the one in the bath - you're going to love mommy for that one when you get married!
I know you're going to miss mom & dad, but are you getting pumped for the Sparty football season?! You've got your awesome tailgating jersey to wear, so wear it with pride and cheer them on!
Auntie Annie is going to take such good care of you this week! You are so lucky to have such a wonderful family and great friends.
I miss you & love you! Let's do lunch again soon, okay? Giant hugs & Elecare-covered kisses! xoxo, Aunt Carin
hey ben!!!
so glad that you're getting bigger, and going to start pt to make sure you're stronger too. you look great (so does your mom) and i love the new pics. sorry i haven't written in a while, things have been really crazy for me. i know your mom & dad are out of town right now, but hopefully i will be able to come see you all really soon. miss you!
lots of love
meghan
Hey Ben,
I'm sorry to hear that you're back at UofM. I've been out of town in TN (that's a whole other state, even farther than Ann Arbor!), but I'm praying for you, and thinking of you and mom and dad, and hoping you'll all be back home again soon and that this is just another one of those small setbacks.
I'm really sorry that you have to go through this - being sick stinks. But having friends & family stick by you and help you push through makes it all less awful.
Heal fast, get strong, and be well soon sweetheart.
Lots of love, hugs & kisses, xoxox, Aunt Carin
Hi Beautiful Benjamin,
It breaks our hearts to see you in the hospital again. You are so blessed to have a mommy who takes such good care of you and keeps the doctors and nurses on their toes. Mommy and daddy are always doing what is best for you. Please tell mommy to get some rest and take care of herself too. We'll see you again in a few days. We love you, mommy and daddy with all our hearts, God Bless you all, Grandma Carol & Papa Phil XOXOXOXOXO
We're sorry that you are back in the hospital. Hopefully the smart medical professionals will figure out what is wrong and have you back home with Mom and Dad real soon. Your family is always in our thoughts and prayers.
Love,
Aunt Kathy & Uncle Mike
Post a Comment