Thursday, July 17, 2008

Poopy Pantalones

I have been pooping too much (average 9 poops a day) so the doctors increased my enzymes to 2 capsules before each feed. Dr. Nasr is in China on vacation so I met with Dr. Lumeng yesterday. I only weighed 7 lbs. 11 oz. at my checkup yesterday. That means on average I have only gained about 11 grams a day since my last visit. I should be gaining about 25-30 grams a day. Hope my dietitian changed 2 of my 7 feeds to all Elecare formula. We will try this for a while in hopes I gain weight at a good rate. If I don't we may possibly have to go on all Elecare for a while. The doctors want me to gain a good amount of weight especially before the winter so I am healthy in order to fight off infections. I am getting about 183 kilocalories/kg per day and the average baby gets about 108 kilocalories/kg per day. I am definitely getting adequate amounts of calories, but with my short gut (malabsorption) and the CF (malabsorption) I am having a hard time holding on to my feeds and absorbing them. My Zantac was changed to Prilosec. Dr. Lumeng said he sees more success with the Prilosec for controlling the acid. This helps with correctly digesting the enzymes. I had blood drawn to check my bilirubin levels and my hemoglobin. I should have the results in the next few days. I also had a throat culture done to make sure I haven't colonized any bacteria. The results for that will be in next week. They will do a throat culture every three months. I am four months now! I love stroller rides. Mom took me on one a few days ago and it didn't last very long because I pooped through my clothes and on my stroller.

Love, Ben

9 comments:

Anonymous said...

Hey Poopie Butt,
I love all the new pictures. You keep getting cuter and cuter by the minute. Keep up the good work.
give Mommy and Daddy hugs and kisses. Miss You all. Everyone loved meeting you at the Robke reunion. You were the highlight of the day.
Love, Bamma Beth and Papa John
XOXOXOXOXO

Anonymous said...

Hi Beautiful Benjamin,
We love your new pictures too! Even though we saw you yesterday, we miss you already and can't wait to see you. Be good and keep the poops down little guy and God Bless you and Mommy and Daddy. Love you all bunches and bunches, Grandma Carol & Papa Phil XOXOXOXO

Anonymous said...

Ben,

You're getting so old, four months already!! I love your new pictures. You look very happy and have such a beautiful smile! I'm glad you're enjoying the stroller rides even if you get so excited that you have a massive blowout :-) It was nice seeing your Mommy at Aunt Carin's wedding. She was looking great as usual. You're very lucky to have such amazing parents! Try to give them a break on the poopy diaper changes though.

Love,
Meg R.

Anonymous said...

Hello Benjamin--
My name is Michelle Jarvis and I am a friend and co-worker of your Uncle Norm, here in Atlanta. He told all his co-workers about your website so we could keep track of your progress. Your Uncle Norm is so proud of you and loves you very much! I think you look a little bit like him! I enjoy reading about you and seeing your pictures. You have a great smile and you are very handsome. I pray for you and your parents every day. Have a great day and keep up the good work!
Michelle

Anonymous said...

Hey Ben,

I love your new pics, I have to get over and see you soon, you are changing everyday! Wedding planning is taking up much of my spare time :o( Besides the numerous poops, I'm happy to hear all is going well.

Love ya,
Aunt Tera

Anonymous said...

Hey Handsome!!

Thanks for sharing your new pictures with us. You are getting more handsome by the hour, mister:)

We are so very happy to read that you really into stroller rides, maybe you could get your stoller modified so you could have killer rims, fat tires with a little hydralics for some occassional bouncing. With a sick surround sound stereo system with killer amps and woofers; and to top it off a plasma screen in the buggy!?!!! Ok so I don't know about sound systems, ya get my drift. lol.

Sending hugs to your Mom and Dad, and we always are praying for you.

Love The Rapson

Anonymous said...

hey ben -- love the new pics! i can't believe how old you are - time just flies by! sorry about all the poopy hy-undies (sorry for you and your mom and dad since they have to change them)! i hope everything else is going well. you are all still in my thoughts and prayers.
lots of love - meghan

Anonymous said...

Hey Poopy Pants!!!

You sure are becoming a big boy! I miss you so much. Your new pictures are adorable....you have the cutest smile!

Hugs and kisses,
Jeanne

Anonymous said...

Hey Ben, heard you're back home - good news! Now we just have to wish and pray real hard that you'll start gaining some chunkier weight than 11 stinkin' grams! Love you and miss you. Mom looks great - I'll have to come visit you soon.

Big hugs & super-sized kisses (with high-calorie lipstick for extra weight), xOxOxOxO, Mr. & Mrs. Flenner :-)