I am still on TPN for my nutrition. I have 6 days left of antibiotics and then hopefully they will start to slowly feed me. Mom gives me a little bit of breast milk each time she pumps and I like that. I have a suction tube in my nose that goes into my stomach still so I don't digest the 1cc she gives me. I do like the taste though. Tomorrow they will draw blood to send to the Mayo Clinic for my full genetic screen. This test should find the other CF gene. Mom met Cameron today. She said he is a cute little boy and he has a lot of energy. When a cure is found I hope to meet Cameron too.
~Ben
9 comments:
Hey Little Buddy,
I've missed you and your mommy sooo much! Keep hanging in there, you are such a little warrior. I plan to visit you this Thursday, have your mommy call me when she gets some free time.
Love,
Aunt Tera
Hi Beautiful Benjamin,
I framed a few of your pictures from the blog and love looking at them especially the one of you snuggling with your mom. Keep getting stronger and soon you will be enjoying her breastmilk again. You are a little trooper and fighter. God Bless you sweet baby (mom and dad too). Love you all bunches, Grandma Carol and Papa Phil XOXOXOXOXOXO
Hi Ben,
Just sending hugs for you, your Mommy and Daddy from Locust Grove, GA. We miss you and can't wait until we can see you again. You continue to be in our thoughts and prayers. Stay strong!
Love,
Chris, Jen, Logan and Delaney
As always we are thinking of you so sorry you and Mom and Dad are having such a tough time. Much love Mark, Irene, Jeremy, and Emily
Hey There Little Man,
I've been out of town lately and just got a chance to catch up on what's been going on in your life. You've been a busy boy with the big move and all. I'm sorry to hear about your Motel 6 room, but it sounds like Dr. Nasr is taking great care of you. Stay strong through these last days on the antibiotics and you'll be chowing in no time. Big hugs to you all!
Luv Ya,
~Michelle
Hi Ben...keep the updates coming! I've passed on your blog for some extra prayers. My friends love to see your pictures. Sorry about the room issue...you know us "diva's" would have to make it nice with a little bit of color. I wonder how those in Ann Arbor feel about your love for green and white? You look good in those colors - brings out your eyes. Glad you are in a good place! Love, Stephanie & Don Schultz and crew.
Hey Ben,
Just popped in to say a quick haigh-de-ho! Your friend Cameron sounds like a pretty remarkable guy - you're all lucky to have him around :-) I'll see you one day this weekend.
Big love, xoxo,
Aunt Carin
Hey Buddy! Just stopping by to say hello! I apologize for not coming around lately. I promise to come by and see you soon though.
JAngco
Hope you are settling in to your new place ok now. Keep on fighting! Hugs and kisses to you.
Love Miss Judy, Mr. Carl & Sean
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