Sunday night I projectile vomited and Mom new something wasn't right. She called the nurse over and told her she was scared. I seemed very lethargic too. The doctors stopped my feeds and put me back on TPN. I had x-rays done right away and they thought there was free air present in my abdomen again. They decided there was air in my bowel wall again and not inside my abdomen. Both situations are not good, but if it were in my abdomen they would have had to performed emergency surgery again. They believe I have an area in my intestine where bacteria grows and produces gas that somehow moves into my intestinal wall where it should not be. Like a pond that is stagnant and grows bacteria. I am on three antibiotics and I have an IV in my head again. They will just monitor me and try to clear the infection. Mom and Dad are sick to their stomachs. It is hard for them to see me like this again. I can not eat and that upsets me and my parents. They feel helpless. I might be moved to U of M sometime this week.
Ben
22 comments:
Hi Ben -
There are a lot of people in the Metro Detroit area who don't really know you and your family, but have been praying for you!! I have a daughter with CF. I was at the Detroit walk, but didn't know about you until after. I have been reading your blog and thinking about you and your family every day, praying that you will all help each other through these difficult days.
Sandra Engebretsen
Hi Ben,
Uncle Norman here. I am so sad about everything you are going through. You hang in there little guy. Tell your Mom and Dad to hang in there also. It must be hard for them but even with the sadness you bring tons and tons of joy to them.
Love you,
Uncle Norman
Baby Ben,
Bamma is so sorry that you have to go through all this. You are such a strong little guy. I love you so very much and loved holding and rocking you last week-end. Give mommy and daddy a big hug and kiss for me.
Love,
Bamma Beth and Papa John
XOXOXOXOXO
Oh Beautiful Benjemin,
Our hearts ache for you and your mommy and daddy, and we feel helpless to ease your pain and theirs too. We pray the doctors will find a way to heal your tummy so you will be strong enough to go home soon. God Bless you sweet baby - we love you sooo much, Grandma Carol & Papa Phil
Hi Ben! This is Jen and Mary from PCA, where your daddy works. Everyone here is thinking about you and we just want you to know that we love you and are praying for you and your parents every day! We love hearing about you and are sorry you are having a tough time. We are looking forward to meeting you when you are feeling better. Your Dad is one of the strongest guys we know! He loves you and your mom so much!
God bless you guys~
Jen Shevchik and Mary McCroskey :) (AND EVERYONE ELSE TOO!!)
Chris, Kati, and Ben,
We're thinking of you and praying for your family! Stay strong. If there is anything we can do for you, please let us know.
Aaron, Jamie, Luca, Mark, and Scott
Benny,
I am so sorry you have to go through all this and that mommy and daddy have to see it. I wish there was something I could do to take all this away from you. All of you are in my thoughts daily, I love you all very much! See you soon!
Love
Grandpa Mark
Oh Ben,
We are sorry to hear about the set back. We continue to keep you, your Mommy and Daddy in our prayers. We know things will turn the corner soon. All our love!
Chris, Jen, Logan and Delaney
Hi Ben -
We are so sad to hear what you are going through. Peyton wants to give you a Band-aid for your Boo-Boo's. We pray everyday for you to get better. We love you and your Mommy and Daddy! Stay Strong!
Love,
Buffy, Scott, Jake and Peyton
Hi Ben,
I hear you are going to U of M...you will love it there! Dr. Nasr will come visit you and your parents and she is so awesome! She always manages to calm my mom and dad down! The whole staff is so wonderful...be sure to tell your parents they have room service!
Stay strong and keep up the good fight!
Your friend, Cameron
Chris, Katie and Ben,
We pray and pray and pray some more. Ben - You will get through this. Stay strong big boy. Chris and Katie, we are truly thinking about you every day.
All of our love (and we have a lot)...Don and steph schultz and the "crew".
Hi Baby Ben,
I am so sad for you and your parents, but want you to stay strong for them and everyone else who loves you so much! There are still lots of people here in California thinking about you. I'm hoping to read some good news very soon!
love,
shell
Dear Little Ben: Something went wrong with our computer 3 days ago and Aunt Annie came over and fixed it for us so we just read your blog for the latest news. We are so sad to hear about what is going on. We feel really bad for you and your Mommy & Daddy. We think of all of you all the time and pray for good things for all of you. We love you lots. Greatgrandma and grandpa K & G
Chris, Kati, and Baby Benjamin,
Your family is going through so much right now. Like everyone else, we feel completely helpless and we wish there was a magic way to make everything better. We'll continue to keep you in our prayers.
Our love,
Uncle Mike & Aunt Kathy
Ben - Hang in there little one. You are so strong! Tell your mom and dad that they can stay with us if you go to U of M.
Love ya,
The Bentley's
Ben certainly hasn't gotten any breaks so far but he has already proven himself to be a little fighter...
I wish there was something I could do- wave a magic wand, have John work something up in the lab, give you guys a hug. But I guess all I can really do is let you know that I have been thinking of you guys. A lot.
dave.
Hi Ben, Kati and Chris,
Sorry to hear this news. You are tougher than a lot of grown-ups I know, Ben, and truly a little miracle. To read the blog and think how horrible and then to see a picture of you with those beautiful eyes open is so amazing. So many people love you so much. Don't be afraid to go to UofM. That's my hospital, and I love all the people there. A little maize and blue can't hurt!! (Did your parents just faint at the thought...lol). If you do transfer, I'll get to visit, because I have several appointments myself in June and July. Feel better my little tough guy and know you are all though of always. Mary-Mary and da boyz xoxoxoxoxoxoxoxoxoxoxoxoxoxox
Oh Ben! We have been thinking about you here at the Stecker house. Everybody is always asking about you. We are sorry to hear that you are not feeling well right now. Take care of your Mommy and Daddy, they love you very much.
Kari, Brian and Anna
Hey handsome!
We were reading all the love on your blog; and saw Cameron's and he and his family sound like they have been to UM and know the 411. Everything sounds so scary, but if they think you need to be there, you will be in the best of care If you go, we will have to get you a half UM and half MSU shirt, this is the only time we are cheering for UM:) Go Blue! Help Ben get better soon! Sweet little angel, you have such a brave heart. We think and pray for you and your parents every day.
Love and hugs
Tha Rapsons
Ben,
Just stopped to check on your progress before I head out of town. It makes my heart hurt that you are having such a rough time right now :'(
I know you are a strong little guy and will wear your green S proudly when you are at UofM - hopefully you will get everything fixed up and be home before Mommy and Daddy know it.
Take care Ben, and know that lots of people are pulling for you!
Jill L.
Dearest Tiny Ben,
I just love your fighting spirit! You know you have a wonderful mom and dad! Checking your blog often and keeping you in our prayers, hearts and minds! XOXO
Love,
Your friends at PCA-Plymouth
Hey there Wiggle Bunny!
What a difference from Sunday to Wednesday, huh? I hope you're getting settled into your new digs at UofM and they're being really nice to you. Your mommy and I were joking that parents couldn't be there at 7 PM because that's when all the nurses go around and pinch the babies!
Well darlin', you are looking really great - your color is fresh and peachy and your eyes are shiny and bright! Keep resting and healing and get that belly ready to start feeding.
I love you sweetheart!
Aunt Carin
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