I am currently on 38 cc's of breast milk every two hours. I am off of TPN since last night. Now I am just trying to talk the doctors into giving me more food. The little 3lb 9 oz. girl next to me gets more per feed than me! The doctors are doing rounds as we speak so hopefully they will be over soon. I am now in the big shared pod again. They had to move me yesterday because a 31 week old baby needed my room. This is hopefully a sign I should be going home again soon.
Later, Ben
13 comments:
Baby Ben,
Bamma Beth is so proud of you! You keep getting stronger and you'll be home before you know it. I know mommy and daddy can't wait to get you home. Give the doctors a hard time so they will let you eat more.
I miss you and can't wait to see you again. We all had fun on the CF walk Friday. I know you were with us in Spirit. Give Mom and Dad a big hug for us.
Love, Bamma Beth and Papa John
Hey Handsome!
We were so very happy to see your email with your picture holding your sign of success. Not a surprise little fella, you are an earth bound angel. Keep up the good work and get stronger so you can come home. We pray and think about you everyday and send hugs to your Mom and Dad.
Love, The Rapsons
Ben -
YAY, great news that you are off the TPN & that you're gaining some weight back. I'm glad your walk Friday went so well & I really liked your thank you note - sooo cute! Keep getting bigger & growing stronger!
Lots of Love -
Meghan
Hi Beautiful Benjamin,
Love your new pictures! Hope your mommy convinced the doctors to give you more food so you can grow bigger and stonger and go home soon. See later honey, God Bless you & love you bunches, Grandma Carol & Papa Phil
GOOOOOOOO Ben!
Lol, your picture with your arm in the air cracked me up. We had a great time last Friday, you are such a loved boy. If I don't see you before my trip, continue to get better and I'll be by to visit you when I come home.
Miss ya,
Aunt Tera
Ben -
We love the new pictures! Keep on pushing forward and you will be home soon! We are so proud of you!
Hugs and Kisses!
Buffy, Scott, Jake and Peyton
Yeah Buddy!
I have to agree with Aunt Tera on the picture! Brought a smile to my face. I must say your developing into a handsome little guy! Wish I could have been there for the walk on Friday, I was there in spirit. Keep up the good work. Miss and thinking about you! Hugs and kisses to mom and dad!
Much love
Uncle Adam
Baby Ben,
I am so happy to see you are doing better and growing stronger each day. We cant wait to meet you.
We love seeing the updated pictures of you, you are the quite the handsome little man. We keep you in our thoughts and prayers, and send hugs and kisses to you and your parents.
Love,
Jenny, Bryse and Aiden
Hey Ben!!!
Love the new pics!! You are getting cuter by the minute! It was great to meet so many of your fans on the walk on friday....so many people love you! Hope to see you soon! Keep up the good work!
Love Ya,
Jeanne
Hi Ben -
Just checking in to see how you are doing. Glad to hear you are off the TPN. We hope you're able to go home soon - it's no fun sharing a pod!
Stay strong!
Jacque and Chris Lett
Ben,
It was a pleasure to meet so many of your family members at the walk on Friday. I hope you will be home with them soon. Thank you and your parents for supporting the walk. I am proud to be working on your behalf for the Foundation and I will continue to work relentlessly for a cure.
Pam Ogg
Executive Director
Cystic Fibrosis Foundation
Metro Detroit Chapter
$12,000...that is soooo amazing
8o)
You are one loved little boy.
My heart is smiling from the updated pictures. You are growing and changing and I love seeing that. Keep it up.
The Dwyers
xoxoxoxoxoxoxo
Ben,
I'm Uncle Marty...many times removed by virtue of Uncle Mike and Aunt Kathy....(she's my sister). Did you know that people in Alabama - at least 30 of us, are praying for you every day? Isn't modern communications wonderful? Anyhow, I love your mommy and daddy because my sister and brother in law love your grandpa and grandma so much. You, young man, are a gift from God (but don't let it go to your head).
You are loved and prayed for by people all over this great big wonderful world. So, from Alabama...ROCK ON, Dude...and keep on getting better and better so that Mommy and Daddy can bring you into a loving home. You Rock!
"Weird, strange" Uncle (in law) Marty
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