I am already eating 30 cc's (one ounce) of full strength breast milk every two hours. That means I get a total of 12 ounces per day. I am still on TPN and I am currently getting 18 cc's per hour through my IV. The doctors have been giving me more than I ever had because I had only been losing weight. I gained about an ounce a day when I was home. The day of surgery I was 6 pounds 8 oz. After surgery and days at the hospital I was down to 5 pounds 15 oz. I am now 6 pounds 5 oz. I am doing very well with my feeds. I will eventually go back on my enzymes once I get to full feeds. I hope to be out enjoying the sunshine soon.
Mom, Dad, and I want to thank everyone for their support at the CF walk yesterday. We are overwhelmed by the love and support all of you have shown us. Mom was happy to see so many friends and family there yesterday. It makes Mom tear up. If we can continue this each an every year we will only get closer and closer to finding a cure.
Smiles, Ben
3 comments:
Good Morning Beautiful Boy,
Yes, it was so nice to see all your family and friends who participated in the walk. We too were overwhelmed with the love and support we have received. It was so nice to meet Pam and Kristy and the other great people from the CF Foundation. We were proud to be a part of Great Strides - what a wonderful event! Keep growing stronger and bigger and soon you will be home. Love you, your mom and dad bunches, God Bless You all, Grandma Carol & Papa Phil
Ben - We had such a wonderful time yesterday at the walk. It was so nice to see all the love and support you have. Keep fighting little one and you will be home soon. Give your Mom and Dad hugs and kisses! Happy Mothers Day to your Mommy! Love - Buffy, Scott, Jake and Peyton
Hey peanut! Have you seen the GREAT shirts that your Aunt Carin made??!?!? So great to have your name on t-shirts worn by so many people. We had a great time on the walk yesterday. We were happy that the weather was pleasant. I am sure that your mommy will show you the pictures of all the people that were there.
I will be around to see you one day next week. I am sure that you will be 1 lb bigger (or at least a few O-Z's) by then. Happy eating.
Lots of love-
JKJ
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