Doctors Doctors Everywhere

I had two doctors appointments this week, back to back. Wednesday I went to see Dr. Brown. I amazed the intestinal team once again. I averaged a 6 gram a day weight gain from my last appointment. They were very pleased with that. They wanted me to gain between 4-10 grams a day. I weighed in at 23lbs 8oz. Scales definitely vary because today at my pediatrician I weighed in at 23lbs 12oz. One ounce up from my last peds visit a few weeks ago. I had to have my blood drawn yesterday too. They ordered a CBC, PTHI, PT7, 25hd, ical, mag and phos, TIBC, and ferritin. Lots of stuff I know. I suggest you google it if you want to know more :) No changes were made to my medications. The team told Mom and me to keep doing what we are doing because whatever it is, it is working. Who would have thought that me, little yellow Ethiopian baby, would be where I am today. I never realized how sick I looked until I look back at my pictures. Wow, I was a "golden" boy...lol

I put comparison photos above just in case you don't remember what I used to look like.

I headed to the pediatrician today to get my Synagis injection. This will help protect me from getting RSV. I have to get this shot once a month until the spring. I was such a big boy I wore my face mask to both appointments. Mom said this would help prevent me from catching the other kids cooties! I had to be restrained by Mom's arms while Dr. Shah examined me. I squirmed and screamed so much there were broken blood vessels on the side of my face. I know this routine all too well. I hate when anyone in a lab coat or scrubs comes near me. Mom always reassures me they are there to help me. I say whatever crazy lady, they piss me off.

Time for my nap.

Ben

Boogies and Boo Boos

Well I finally got my H1N1 vaccine today. The awesome nurse at my peds office saved me a single dose vaccine and called Mom to tell her they had it waiting for me. My nurse loves me because she was also my nurse at Beaumont and she remembers how sick I used to be and can't believe I have come so far. I went right in this afternoon with my mask on and got that nasty poke in my thigh. Mom goes later today to get her vaccine. Her doctor finally got the injectable vaccine too. Most places around here had the live nasal vaccine, but we can not get it because of my CF.

I had to go into the peds office this past Friday because I woke up from my nap and vomited and had a temperature of 101.4. The night before I did not sleep well at all. I woke up every few hours crying. I didn't have a temperature then, but it kicked in the next day. I also had a runny nose, but Mom thought maybe I was getting a few more teeth in. They did the nasal swab to test for H1N1 but it came back negative. The test only has a 60%-80% accuracy rate, but they still wrote me a script for TAMIFLU. My pediatrician did not want to take any chances on having whatever virus I had invade my lungs full force and cause me more issues. Mom and Dad were bummed that I got sick, but they have kept me from getting any colds and infections since I was born so that is pretty good. I am doing much better these last few days. Loud and crazy like usual.

I milked being sick and was nice and cozy on the couch. Dad even held my water so I could sip it.

My cat Cali slept in my chair while I was sick. Mom took a picture so she could show me. Naughty Cali in my big boy chair. I told her it doesn't say Cali on the chair it says Benjamin!

Boogies, boo boo's and no no's too,

Ben