Benjamin Anthony

Hello everyone! My name is Ben and I was born March 10, 2008. I have Cystic Fibrosis and Short Gut. This is all about me and my determination to find a cure for Cystic Fibrosis. I was born with a blockage in my small intestine. This caused a large part of the intestine to twist. When I was 12 hours old I underwent surgery to remove the bad parts. I have about 40-50cm of good intestine remaining plus a healthy ileocecal valve. On March 22, 2008 I was diagnosed with Cystic Fibrosis.

Monday, February 6, 2012

New Year, New Heavier Ben

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Ben had a PEG Tube placed on Jan 13th. He had not gained any weight in over six months. We always knew it was a possibility he might need on...
1 comment:
Sunday, September 4, 2011

Crazy Wonderful Summer

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We have thoroughly enjoyed our summer! As you can tell from our looong break from blogging we have just been living life to the fullest ...
1 comment:
Monday, May 16, 2011

GREAT STRIDES 2011

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My walk is this weekend!!! Ben's Buddies Detroit Riverfront Great Strides Walk is this Saturday, May 21st. Check in is at 10am and the ...
2 comments:
Monday, March 21, 2011

The Big 3 and My Clinic Updates

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My birthday was March 10 and I turned 3! I had a big party at Inflatable Playspaces and I had a blast. I had about 20 of my closest friends...
5 comments:
Sunday, February 27, 2011

My Allergist Results

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I had my yearly allergist appointment last week. I am still allergic to cow's milk and casein and whey proteins. Basically anything that...
1 comment:
Thursday, January 13, 2011

Holidays and Soccer

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I had a wonderful Christmas! I began to understand the concept of Santa Claus this year and asked him for Tom Set (Thomas the Train Set). Ev...
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Thursday, December 9, 2010

A Little Bit Of This And That

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I am happy to report that this year has been grand! I am the healthiest I have ever been since I graced this world. I have spent 310 hours ...
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